TRIO

UNOS News Archive

Note: compilation of all news stories on the pediatric lung allocation issue are grouped together several items down...

9/30/13: Mother donates late son’s kidney to friend’s ill son - a directed donation story (Columbus Dispatch)
9/26/13: Study Examines Health of Kidney Donors (Science Daily)
9/25/13: Finding may help doctors pinpoint likelihood of kidney transplant failure (Medical Press)
9/24/13: Wait list mortality higher for female heart transplant candidates (Cardiology Today)
9/25/13: Medscape has issued a special report under its “Business of Medicine” topic on issues in declaring death. Among its various opinion pieces, covering a range of perspectives, are the following:
. . . Death of the Brain Is Not the Death of the Human Being
. . . Why Brain Death Should Be a Legal Fiction
. . . Brain death: You're Legally Dead Despite Your Beating Heart
9/20/13: Who Lives, Who Dies: African Americans and organ transplants (Frost Illustrated)
9/4/13: Who Should Be First In Line to Receive a Transplant Organ (NPR)
9/1/13: Organ donation organizations shift recovery efforts in-house (TribLive News)
9/1/13: Donor's mom is a volunteer not concerned about salaries, finances of organ procurers (TribLive News)
8/31/13: Gift of life worth millions to donation organizations (TribLife News)
8/20/13: Unemployment restricts access to kidney transplants, UNH research finds
8/7/13: Woodhaven Woman Wants to End Own Life to Donate Organs (CBS Detroit)
8/7/13: Amid organ shortage, altruistic kidney donations increase but bring forth ethical debate (Oregon Live)
7/30/13: AST Desktop: Conversations with the President - Implications in Challenging the OPTN (AST)
7/29/13 Ethicist: Teens have high failure rates after organ transplants -- but cut them some slack (NBC News health)
7/29/13: What's the Fairest Way to Dispense Donated Organs? (NationalJournal)
7/24/13: U.S. Congress Moves Closer to Lifting Ban on Transplanting Organs From HIV-Positive Donors (Science Magazine)
7/22/13: Dispute over organ donation brings attention to defining death (The Columbus Dispatch)
7/18/13: Ron Paul: End government control of organ transplants and compensate donors (Houston Chron)
7/17/13: Who gets the kidney? 5 Changes to the Allocation System (NKF blog)
7/17/13: Commentary: The economy of human organs and transplants (Examiner.com)
7/10/13: UNOS awarded continuation of national transplant network contract
7/9/13: Predictive Analytics and How to Decide Who Should Receive Organ Transplants (IEEE Spectrum)
7/8/13: Facebook Boosts Organ Donor Registration (Medical News Today) looking back at impact one year later
7/3/13: Nephrology News & Issues: Explaining the new deceased donor kidney allocation policy
6/25/13: OPTN/UNOS board approves new deceased donor kidney allocation system (KAS)
Pediatric Lung Allocation issue news & resources . . .

9/3/13: Turning Wrong Into Right: The 2013 Lung Allocation Controversy (Annals of Internal Medicine)
9/1/13: Sarah Murnaghan case ruffles feathers but exposes problems (Philly.com)
8/28/13: Clarification: Lung Transplant-Pennsylvania Story (ABC News)
8/28/13: Sarah Murnaghan goes home to Newtown Square (Philly.com)
8/27/13: 11-year-old lung transplant patient on her way home (NBC News)
8/13/13: 11-year-old lung transplant recipient to undergo another surgery (Fox News.com)
8/9/13: Sarah Murnaghan Celebrates 11th Birthday After Double-Lung Transplant (ABC News)
8/7/13: Girl who underwent lung transplants takes steps toward recovery (CNN Health)
8/1/13: Sarah Murnaghan, who underwent multiple adult lung transplants, to leave intensive care (CBS News)
6/22: Sarah Murnaghan awake and responsive after lung transplant (a full history of this story in this CNN video)
6/15: June TRIO E-News focuses with summary on pediatric lung allocation issue
6/15: Boy on lung transplant waiting list happy for Sarah Murnaghan (ABC News)
6/14: Sarah Murnaghan Lung transplant Puts Court Hearing Over Organ Donation Rules On Hold (Huff Post)
6/13: Mom on Lung Transplant: 'New Beginning for Sarah' (ABC News video)
6/13 Sarah Murnaghan, 10, has successful lung transplant surgery (AP video)
6/12: Sarah Murnaghan, 10, gets adult lung transplant she fought for (Note: should read "11" - CBS News video)
6/12: Sarah Murnaghan's Surgery Deemed a Success (HUFF POST)
6/11: Lung Transplants: Objective Fairness vs. Wisdom of Solomon (a background on the allocation policy history)
Orqan transplant rules eased for children (Philly.com)
6/10: Mother of ailing NYC boy at Phila hospital please for lung (philly.com)
6/10: Vote Allows Children Under 12 Seeking Lung Transplant to Have Case Reviewed (NY Times)
6/10: UNOS approves discretionary listing of pediatric lung transplant candidates (UNOS press release)
6/10: Dying girl intubated as she awaits lung transplant (FOX News)
6/9: Transplant outrage has a solution: more organ donors (VITALS NBCNEWS.com)
6/9: Despite lung-donor ruling, eligibility still complex (Philly.Com)
6/7: Ethicists weigh in on pediatric lung transplant case (USA TODAY)
6/7: Boomer Esiason: Sarah 'has to have a chance' (Fox News video)
6/8: Judge's ruling for second child needing a lung raises concerns (Philly.com)

ASTS and AST Release Joint Statement
6/6: Needed: A Conversation on organ donation (Philly.com)
6/6: Dying girl Seeking Adult Lungs Wins Temporary Exemption (Bloomberg)
6/5: Ethicist: Bureaucrats, politicians shouldn't decide if Sarah gets lungs (VITALS on NBCNEWS.com)
6/5: Judge orders girl added to adult lung transplant list (VITALS on NBCNEWS.com)
6/4: Sebelius won't intervene in girl's transplant case (VITALS on NBCNEWS.com)
5/29: Dying girl's plight sparks fight over organ transplants (CNN wire on ABC15)
5/27: OPTN Statement Regarding Lung Transplantation and Pediatric Priority (UNOS press release)
Lung Transplant and Listing Explained

5/30/13 Anonymous kidney donation is on the rise, fueled by compassion
4/24/13 Living Lung Donation Story from Canada (video)
4/18/13 Tool Created to Help Patients Decide Whether to Take a Kidney Offer or Wait for a Better One
3/25/13 Senate Committee Passes Bill to End Ban on HIV-positive Organ Donation
3/15/13 CDC: Man died of rabies from kidney transplant
3/11/13 New Kidney Allocation Proposal Is Ethically Unacceptable (from Nov 12 US News)
3/1/13 On Purposely Getting Arrested, to Get Life-Saving Surgery (liver transplant)
1/29/13 Kidney Donation Over Age 70? Desperate Patients Saying, 'Yes, Please'
1/29/13 Kidney Sharing System May Change to Better Accommodate Older Patients
1/23/13 UNOS Kidney committee Jan 14th meeting notes on discussion and responses to public comment
1/13/13 Lives Forever Linked Through Kidney Transplant Chain of 124
1/10/13 Who Should Receive Organ Transplants (NY Times blog about age and priority)
1/2/13 Husband Undergoes Transformation to Help Wife Get New Kidney
12/14/12 UNOS long time leader, Walter Graham, announces his retirement
12/9/12 UCLA Performs first 'breathing lung' transplant in United States
12/8/12 Improving Outpatient Management Could Reduce the Rate of Readmission of Kidney Transplant Patients
11/21/12 Tax Incentives and Organ Donation
11/18/12 Transplant Recipients At Increased Risk When Low Levels of Donor-Specific Antibodies Present
11/14/12 Hospitals Ordered to Do More to Protect Kidney donors
11/6/12 When was the first human organ transplant?
10/25/12 UNOS offers Kidney Allocation Proposal webinar November 7, 2012 (2:00 p.m. - 3:15 p.m. ET)
10/25/12 Kidney transplant surgeon offers hopeful insight on UNOS kidney proposal process
10/24/12 Most Liver Transplant Candidates Receive Donation Offers
10/3/12 UNOS calls for public comment on new Kidney allocation proposal
10/1/12 Proposed Kidney Rule Shift Would benefit some kidney patients on waiting list for transplant
9/25/12 NY Times Editorial: Kidney Discards and the New UNOS Kidney Allocation Proposal
9/20/12 In Discarding Kidneys, System Reveals Its Flaws
9/14/12 How organ donation teams respond in a crisis
9/14/12 Giving the Gift of Life through Organ Donation (a TED video)
6/13/12 Protecting the Hearts of Those Waiting for Kidney and Liver Transplants
5/23/12 "Over 50?" organ donor promotion by HRSA
4/30/12 LVADs May Confer Unfair Transplant Advantage
4/30/12 Kids' Kidney Transplant Rules May have shrunk 'Race Gap'
4/5/12 Experts Recommend Single Registry to Oversee (chain) Transplant Donations
4/2/12 UNOS launches new Transplant Living web site
3/21/12 TRIO president, Jim Gleason, among those elected to serve 3-year term on UNOS board
3/15/12 Donor Chains and the Legality of Compensating Kidney Donors
2/18/12 Everything you wanted to know about OPTN paired kidney donation program
1/22/12 UNOS Facts (the latest numbers in detail as of 1/22/12) (PDF file)
1/13/12 UNOS releases updated "What Every Patient Needs to Know" book (available to order by mail or download) (<-- click to link to that action)
1/6/12 US Proposes Regulating Face and Hand Transplants
12/9/11 Presumed consent not answer to solving organ shortage in US, researchers say
(New) UNOS calling for public comment on new proposals (see link below)
Should the ban on HIV-positive organ transplants be lifted?
Mismatch matters for kid's kidney transplants
Elimination (in 2003) of matching for HLA-B improved minority access to transplants
UNOS Board Executive Summaries from annual meetings
US Officials Propose Further Retreat from 1st-come, 1st-served Organ Donation (CMAJ)
(video) ABC News report on Proposed Kidney Allocation Impact
Public Comment open on 13 policy proposals (due by June 1st)
Feedback Requested for Concepts on Kidney Allocation
UNOS Exec Dir, Walter Graham: Organ Donation Must Remain a Gift (Grahman's e-mail address: This email address is being protected from spambots. You need JavaScript enabled to view it.)
UNOS Releases Updated Patient Information Letter
UNOS Calling for Public Comment on Proposed Policies - "Your chance to be heard!"
UNOS policy proposals are continually being offered for public comment, now in a more user-friendly format. These proposals highlight proposed changes by the many committees that support UNOS in its work and policy making process. After a public comment period ends, the sponsoring committees review all feedback and make necessary modifications before passing their final recommendation on to the OPTN/UNOS Board of Directors who in turn review and vote on these proposals at their quarterly meetings, leading to implementation of those that gain such final approval. You are encouraged to become part of this process by offering comment when invited by those announcements which are listed on the http://optn.transplant.hrsa.gov/policiesAndBylaws/publicComment/proposals.asp web site, or Click here to read proposal details and comment .
Thank you,
- Mike Sosna, Chair, TRIO Public Policy Committee
Note: to see the UNOS Communications archive for transplant professionals, click here --> UNOS Communications
UNOS Newsroom (general link for current UNOS news items)

Participants Named for National Pilot Project for Kidney Paired Donation

Avoiding Confusion with Advanced Directives and Organ Donation - interesting article in UNOS UPDATE magazine

Center for Transplant System Excellence to Study National Potential for Future Deceased Donation; Federal Contract Amendment Worth Nearly $1.7 Million Over Two Years As the demand for organ transplantation continues to grow, many key decisions in medical care and national policy depend on a realistic estimate of the future number of potential deceased organ donors. The Center for Transplant System Excellence, a new initiative of United Network for Organ Sharing (UNOS), will study this issue.

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