"Wow, what a great source of information and inspiration. I've already purchased four of the books highlighted here and now recommend this TRIO resource to my nursing friends..."
- Comments from a transplant nurse in Omaha, NE
Note: as of August 2012, this entire collection of over 150 transplant related books, many autographed by the authors and most with reviews, have been moved to the Gift of Life Donor Program's new Family House library (Philadelphia, PA) to be available for families and patients visiting there.
Keep in mind that typically it takes some extreme experience to have a story worth writing a book about, so what you read in these books, while factual and real-life, should not be taken as "typical" transplant experiences. Every patient will have their own unique transplant challenges and outcomes. Read them for the inspiration they offer us all in how the human spirit can deal with life's "adventures" and then go off to write your own "real-life" story.
Click on the Download File button with each book image below to read the full PDF review (not all have reviews to download and some are in progress of being written.) or others link to a web site for that book.
Racing Against Time: Surviving an Organ Transplant and Living a Healthy Life
by Anthony Anjoubault (1995) Liver transplant success story with advice for healthy living
Second Wind: Oral Histories of Lung Transplant Survivors
by Mary Jo Festle (2012) Excerpts from oral history interviews reveal the physical and psychological challenges of deciding to pursue a transplant, waiting for a donor organ, and adapting to a new life with a lung from someone who died
by Christopher Reeve (1998) This is the determined, passionate story of one man, a gifted actor and star, and how he and his family came to grips with the kind of devastating, unexplainable shock that fate can bring to any of us.
by Liz Maxwell This is a book about living life to its fullest despite an interruption for a life saving transplant. In this collection of writings by Liz Maxwell, we find just four insightful reflections about facing and later receiving a liver recipient.
Have you ever left a medical appointment thinking your doctor interacted more with her computer screen than you? Health care’s long immunity to computers had been remarkable when compared to other industries, until we entered the 21st Century. Now it too has fallen under the spell that digital technology improves the performance of everything it touches.
UCSF’s Chair of the Department of Medicine, Robert Wachter explores the good, bad and repugnant of we patients becoming iPatients in his delightfully entertaining and informative “The Digital Doctor.”
Download Steve Okonek's review below
The remarkable true story of acclaimed opera singer Charity Tillemann-Dick, who received not one but two double lung transplants and went from struggling to draw a single breath to singing at the most prestigious venues in the world
The first 100 Days After Kidney Transplant Surgery - book 2
Transplant care can be a very complex task for most patients. The survival of the transplanted organ and the patient is related to medication adherence, complications rate etc. These variables are directly influenced by education of providers and patients.
A successful transplant improves the quality of life and is the most cost effective way to treat ESRD.
With the help of many colleagues around of the country I prepared two ebooks which would assist patients/caregivers in their difficult journey:
Book1- is a comprehensive tool for people at any stage of their transplant. It covers transplant course from the day they receive the allograft, hot topics, frequently asked questions, and living donor education. (<-- click to link)
Surviving the waiting list and liver transplantation: The inspirational story of one man's triumph over terminal liver disease: A guide for transplant patients and their families by Yomtoob & Wepler (2005)
A novel built around the many participants lives in a 24-hour time around a heart donation and transplant. Bill Gates was cited as recommending this as his 2017 Summer read and I couldn't agree more (from the perspective of this 23 year out heart transplant recipient myself.
by Stu Strumwasser (2015) is 'a novel' but reading it leaves one wondering if in fact it was based on some real-life characters (hope not).
The Organ Broker is the thrilling story of an underground black market organ dealer known as “New York Jack.” For eighteen years Jack has been a “transplant tourism director,” sending wealthy Americans and Europeans in need of kidneys and other organs to third world countries where they would buy them from transplant centers on the take.
Dowload a full review of the book by liver recipient, Steve Okonek below.
The Survivor, The Hero, The Angel, A mother's story - one decade
by MaryAnn Raccosta (2012) (true ten year story of family dealing with two infant boys disgnosed with a very rare liver disease - biliary atresia - and within months, an astonishingly rare metabolic disease, TPD)
Time and routine blunt none of the grief and hope and challenge of the transplant web for every organ recipient, for each donor family and for all the cool professionals who serve it. After medical school at the University of Minnesota and surgical training at the Mayo Clinic, S.R.Maxeiner, Jr. completed his years in the US Navy with the US Marines in Korea. He founded Surgical Consultants, a surgical practice in Minneapolis, which still serves today. On retirement, Bob and Tricia moved to Sanibel, FL, where he continues to write fiction and drama.(2016)
Author Paulette Pratt adds this book to the Gift of Life series published by the British Organ Donor Society
Validated by experts, this insightful introduction to transplantation should prove a valuable resource not only for those personally involved as patients, families or friends but also for junior medical and nursing staff and others in training. It charts the history of transplantation from its perilous beginnings through to the present day, when replacement of failing organs is commonplace. It tackles also the problem of organ supply and the sensitive issues surrounding organ donation. A continuing dilemma is that, while most people are wholeheartedly in favour of transplantation, there remains a constant shortage of organ donors. The book clarifies the distinction between the two types of cadaver donors: patients suffering brainstem death or those in irreversible cardiac arrest (whose organs must be taken within minutes of death). Increasingly, too, living donors are coming forward to save the lives of relatives or friends. The book traces the recipient experience as it unfolds from pre-op investigations through to the operating theatre and the months and years beyond. The author also explores the search for alternatives to transplantation now increasingly urgent in light of the organ shortfall.
By Sherwin B. Nuland (2008) (reflections on his long life in medicine by this renowned physician and author with a final chapter involving his grief over a patient's death waiting for a heart transplant)