"Wow, what a great source of information and inspiration. I've already purchased four of the books highlighted here and now recommend this TRIO resource to my nursing friends..."
- Comments from a transplant nurse in Omaha, NE
Note: as of August 2012, this entire collection of over 150 transplant related books, many autographed by the authors and most with reviews, have been moved to the Gift of Life Donor Program's new Family House library (Philadelphia, PA) to be available for families and patients visiting there.
Keep in mind that typically it takes some extreme experience to have a story worth writing a book about, so what you read in these books, while factual and real-life, should not be taken as "typical" transplant experiences. Every patient will have their own unique transplant challenges and outcomes. Read them for the inspiration they offer us all in how the human spirit can deal with life's "adventures" and then go off to write your own "real-life" story.
Click on the Download File button with each book image below to read the full PDF review (not all have reviews to download and some are in progress of being written.) or others link to a web site for that book.
Passages in Caregiving: Turning Chaos into Confidence
by Gail Sheehy (2010) Bestselling author of Passages shares from her personal experience lessons in how to care for a loved on through chronic illness and death
Second Wind: Oral Histories of Lung Transplant Survivors
by Mary Jo Festle (2012) Excerpts from oral history interviews reveal the physical and psychological challenges of deciding to pursue a transplant, waiting for a donor organ, and adapting to a new life with a lung from someone who died
by Christopher Reeve (1998) This is the determined, passionate story of one man, a gifted actor and star, and how he and his family came to grips with the kind of devastating, unexplainable shock that fate can bring to any of us.
by Liz Maxwell This is a book about living life to its fullest despite an interruption for a life saving transplant. In this collection of writings by Liz Maxwell, we find just four insightful reflections about facing and later receiving a liver recipient.
Surviving Kidney Disease: True Stories of Love, Courage, Hope, and Heroism
Dr. Fisher is a nephrologist who "gets it". He is a recovering cancer patient. He understands the challenges of chronic disease as a patient. He has also seen the challenges of his patients with renal failure and the related diseases like diabetes. Surviving Kidney Disease tells amazing stories of kidney patients who are holding onto hope. It describes kidney disease, its progression and treatment. It also shares the reality of prevention and new treatment options such as artificial kidneys.
Have you ever left a medical appointment thinking your doctor interacted more with her computer screen than you? Health care’s long immunity to computers had been remarkable when compared to other industries, until we entered the 21st Century. Now it too has fallen under the spell that digital technology improves the performance of everything it touches.
UCSF’s Chair of the Department of Medicine, Robert Wachter explores the good, bad and repugnant of we patients becoming iPatients in his delightfully entertaining and informative “The Digital Doctor.”
Download Steve Okonek's review below
The remarkable true story of acclaimed opera singer Charity Tillemann-Dick, who received not one but two double lung transplants and went from struggling to draw a single breath to singing at the most prestigious venues in the world
The first 100 Days After Kidney Transplant Surgery - book 2
Transplant care can be a very complex task for most patients. The survival of the transplanted organ and the patient is related to medication adherence, complications rate etc. These variables are directly influenced by education of providers and patients.
A successful transplant improves the quality of life and is the most cost effective way to treat ESRD.
With the help of many colleagues around of the country I prepared two ebooks which would assist patients/caregivers in their difficult journey:
Book1- is a comprehensive tool for people at any stage of their transplant. It covers transplant course from the day they receive the allograft, hot topics, frequently asked questions, and living donor education. (<-- click to link)
Surviving the waiting list and liver transplantation: The inspirational story of one man's triumph over terminal liver disease: A guide for transplant patients and their families by Yomtoob & Wepler (2005)
A novel built around the many participants lives in a 24-hour time around a heart donation and transplant. Bill Gates was cited as recommending this as his 2017 Summer read and I couldn't agree more (from the perspective of this 23 year out heart transplant recipient myself.
A novel that certainly qualifies as a 'great Summer read' involving a heart transpalnt recipient dealing with the impact on her life when she comes into contact with her donor through that donor family. I loved this amazing story telling. Part sad, part mystery, part sensual and finally an O'Henry type ending that tied the whole storyline together. Highly recommend this read which was gifted to me by a friend who knew my heart story and felt the connection would be just perfect reading, which was right. The heart transplant recipient transforms her deteriorating lifestyle when confronted and challenged with a letter from her donor with a 'bucket list' of things that donor, Lucy Harte, wanted to do in her life. Very enjoyable read, but even more so for myself being a heart recipient out 24 years at the time of this reading. Highly recommend for all ages, but keep in mind that this is a fictional story, so don't take it as representative of actual life post organ transplant.
by Stu Strumwasser (2015) is 'a novel' but reading it leaves one wondering if in fact it was based on some real-life characters (hope not).
The Organ Broker is the thrilling story of an underground black market organ dealer known as “New York Jack.” For eighteen years Jack has been a “transplant tourism director,” sending wealthy Americans and Europeans in need of kidneys and other organs to third world countries where they would buy them from transplant centers on the take.
Dowload a full review of the book by liver recipient, Steve Okonek below.