A general introduction:
Full text of the video follows . . .
- Welcome to the TRIO Post-transplant cancer web site. Here you will find twenty-four pages of structured educational material and videos to raise awareness of cancer risk for transplant recipients. Once aware of the higher risk, you can learn symptoms to watch for and how to deal with cancers that affect the majority of long-term transplant survivors. By early detection and prompt treatment, together we can save lives and help preserve the quality of this amazing life that has been extended through organ transplantation and the gift of a donor.
- How did this TRIO Post-transplant cancer project come about? Story: Steve’s call about recent TRIO member death due to cancer and his challenge of “What are we going to do about it?” and my response (short story here) . . . resulting in TRIO taking on this 5-year Post-transplant cancer project. This is a work in process, with the web site content being developed over time and a formal web site design to be undertaken early in 2015. Today you will find the early results of our research with many topics obviously still under development, more being added each and every week.
- I am personally passionate about this effort because of my own personal experiences of early detection and treatment of prostate cancer, kidney cancer and now years of skin cancers as I pass my twentieth year with this amazing heart transplant. Each has been just a ‘bump in the road’ and not a death sentence due to that ‘best practice’ of early diagnosis and treatment, some by due diligence, some by blessed chance and good proactive medical care of very caring doctors and nurses.
- On this web site there is a lot of information that will help you understand a process that is supported by a set of measurable learning objectives and eventually even behavioral modifications based on a set of ‘best practices’ applicable to your long term post-transplant survival.
- Now go and enjoy the learning experience the site has to offer with many videos to make that learning easier and interesting. First, check out the column explaining the higher risk of cancer types by type of organ transplant. Second, look to the modules about the cancer types that you are most interested in. Thirdly, check out the life cycle of cancer from prevention to diagnosis, treatment and long term recovery. Below that are many additional resources for you to explore in depth including on-line links to cancer topics, those testimonials mentioned earlier and a list of best practices to apply to your own life habits. You can even see the learning objectives for this site as further foundation to create that better life dealing successfully with this ‘higher risk’ that comes with our life saving transplants.
Currently there are only place holder pages for the various topics on the site. A formal design of the PTC web site begins January 1st, 2015 while content is being developed for that new site in phases here to populate that design. Each phase will address the most common types of post-transplant cancers, i.e., skin cancer, and the most common type of organ transplant, i.e., kidney as first priorities.
Suggested reading/study path:
- Review this page of general background information
- Link (see Section #2 below) to Cancer Risks by Organ Type for your personal organ transplant received to understand what types of cancer are most common risks for that organ type
- Based on the risks by your organ transplant type, linke to a specific Cancer Types (see Section #3 below) to learn about the common types of post-transplant cancers and how to detect each
- Link to Cancer Life Cycle Phases (see Section #4 below) to learn how to deal with each phase of cancer from prevention to recovery
- Learn the 'Ten best practices' to living a long and fruitful, healthy life avoiding cancer and dealing with the higher risk of cancer in your post-transplant life
- Learn about TRIO sponsored research on how to change behaviors and habits for patients post-transplant life with the higher risk of cancer and how you can participate in that research to help others from your personal post-transplant cancer experiences
What can you expect from all this?
Our goals (i.e. measurable learning objectives) for this post-transplant cancer resource include:
General goals statement:
1st, recognition and acceptance of the higher PTC risk facts, followed 2nd by learning how to recognize symptoms, then 3rd looking for those symptoms and 4th taking actions based on learned best practices and self-exam findings to prevent, diagnose and treat PTC with support of your medical teams
Objective #1: organ recipients will understand and acknowledge their increased risk over time of cancer post-transplant and in particular for their organ transplant type
Objective #2: organ recipients will learn and apply PTC best practices especially as they relate to prevention and diagnosis of common types of post-transplant cancers with a written set of personal goals created from those best practices
Objective #3: organ recipients will learn to recognize symptoms of common post-transplant cancers
Objective #4: organ recipients will carefully, regularly self-examine for signs of cancer, proactively following up on any suspicious symptoms with their medical teams
Objective #5: organ recipients will take actions to engage medical professionals in periodic screenings for post-transplant cancers appropriate to their type of transplant, age, length of time from transplant and personal/family history of cancer
Objective #6: recipients will insure that exams and diagnosis concerns are not dismissed in being overly simplified, rather handled by organ transplant specialists familiar with the higher risk of cancer for transplant recipients.
The BIG picture . . .
(click on the image below to change to the same site map with live links to each topic):
To link to each element of this web site diagram above, click on the corresponding title below (Most are place holders, actual web page is under development in phases):
1. PTC: General Introduction (this is the page you are currently viewing)
DISCLAIMER: The content of this TRIO post-transplant cancer Web site is not influenced by sponsors. The site is designed primarily for use by transplant recipients and their supporters. The information contained herein should NOT be used as a substitute for the advice of an appropriately qualified and licensed physician or other health care provider. The information provided here is for educational and informational purposes only. In no way should it be considered as offering medical advice. Please check with your transplant team or a physician skilled in cancer and your organ type if you suspect you are ill.