"The Stenzel twins" : Anabel Stenzel & Isabel Stenzel Byrnes
Isa and Ana are identical twins, and known worldwide at the Stenzel twins. Born with CF, they have dedicated their lives to staying alive and with the medical advances of organ transplant, become award winning athletes at the US Transplant Games and world travelers promoting organ donation especially back in their native Japan.
While their stories could fill a book (it has) and a movie (it has), the following two TED presentations will suffice for this TRIO web based resource here. The first is a talk given back in June of 2013 with both sharing their lives in a TED talk:
Isabel and Anabel Stenzel are 41 year old identical twins who resided separately in Redwood City, California. They both graduated from Stanford University with degrees in Human Biology in 1994. Anabel ("Ana") completed a Master's of Science degree in Genetic Counseling at the University of California, Berkeley, in 1997. Sadly, after living a full life every day, Ana died 9/22/2013. Isabel ("Isa") completed Master's degrees in Social Work and Public Health from the University of California, Berkeley, in 1999. Anabel was a genetic counselor at Stanford University Medical Center and Isabel works at Sutter Care at Home as a bereavement social worker. Isa and Ana are sought-after public speakers. With their memoir (The Power of Two, University of Missouri Press, 2007) and award-winning documentary film in which they are the primary subjects (The Power Of Two, Directed by Academy Award nominated Marc Smolowitz), Isa and Ana focus their health-related advocacy work on the cystic fibrosis and organ transplant community. They have lectured throughout their mother's country, Japan, about organ donation and patient advocacy. Isa and Ana served as active Ambassadors for the California Transplant Donor Network, which helps raise awareness about the critical need for organ donation. Anabel served on the Board of Directors of Cystic Fibrosis Research Inc. Isabel currently serves on the Ethics Committee for the United Network of Organ Sharing. In their spare time, Isa and Ana enjoyed hiking, swimming, jogging and spending time with family and friends.
In 2014, with Ana's death just 8 months earlier, Isa gives further insight into her grieving process, offering advice for others who face a loss of a dear loved one based on her recent life experience: