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Judy Regnier. RN

Judy Regnier. RN

As an ICU RN back in the 1980s, I cared for many with profuse bleeding, and we did not use gloves and universal precautions as are standard now. This is how we believe I contracted Hepatitis C, back in the 1980s, when medical science was not even aware of Hepatitis C – it was simply called a mysterious non-A, non-B hepatitis, if it was diagnosed at all. I had no idea I was even sick,...

"The Stenzel twins" : Anabel Stenzel & Isabel Stenzel Byrnes

Isa and Ana are identical twins, and known worldwide at the Stenzel twins.  Born with CF, they have dedicated their lives to staying alive and with the medical advances of organ transplant, become award winning athletes at the US Transplant Games and world travelers promoting organ donation especially back in their native Japan. While their stories could fill a book (it has) and a movie...

Emmalyn Brown

Emmalyn Brown

Age: 16 (in 2014)
My organ donation story began in March 2007 when I was just a 9-year-old. The day my story began, I felt fine and although I had been born prematurely as a twin, I had experienced no long-term problems. I was completely healthy. Then my skin dramatically turned yellow during gym class. After several visits to the doctor and hospital over the next week, I was diagnosed with a probable case...

Regina McGuire

Regina McGuire

My name is Regina McGuire and I am seventeen years old. At age six, I was diagnosed with severe Aplastic Anemia. This disease causes a persons bone marrow to stop producing the blood cells necessary for survival. From age six to seventeen I relied on the generous blood donations of others. This treatment allowed me to live a relatively normal life up until last year when my family, my doctors,...

Yushi Nomura, TRIO Japan chapter president & two-time liver recipient

Yushi Nomura, TRIO Japan chapter president & two-time liver recipient

TRIO’s Japan chapter is one of our largest and longest lived and a primary reason we earned the description ‘international’. Japan’s TRIO president, Yushi Nomura, faces an immense challenge to spur organ donation in his country - an extreme irony given that Japan has contributed much to transplant science. A past recipient of TRIO’s Lifetime Achievement Award, he...

Jane Liaw

I’ve been a worrier since I was a child. As far back as I can remember, I would wait anxiously when my parents left the house without me, afraid something terrible had happened and they would never be coming back. As a college freshman, I gravely told my Resident Advisor, who was dating a younger student, “Marrying a younger man is a great idea because men die earlier than...

Claude Brady - TRIO Pioneer

Claude Brady - TRIO Pioneer

When Claude Brady was a young bachelor, he knew he wanted to marry a lady who already had children. It was an unusual wish, but he was an unusual man. He had a genetic condition that had caused him much suffering, and he was the kind of person who thought ahead—he didn’t want to pass his disease on to his biological de­scendants. “There was no way I was...

Dr. Thomas Starzl - TRIO Pioneer/Founder

Dr. Thomas Starzl - TRIO Pioneer/Founder

As seen in this photo, TRIO president, Jim Gleason, presented Dr. Tom Starzl with a special gift at its 25th Anniversary meeting in Pittsburgh honoring him both as the founder of TRIO and for his amazing lifetime of achievements in the world of transplant. Read Dr. Starzl's biography summary at: http://www.achievement.org/autodoc/page/sta0bio-1

The Miracle of Lon Bullman

The Miracle of Lon Bullman

If a man who’s had three heart attacks, fought several bouts with cancer and overcome other serious illnesses tells you his life is a miracle, you pretty much take him at his word. Lon Bullman is a miracle man and a fighter--after getting knocked down by so many health challenges, he keeps getting back up again. He’s also a lucky man, and he knows it. If not for the blessing of...

J.T. Rhodes – A Remembrance

J.T. Rhodes – A Remembrance

I am honored to write about a dear friend and an inspirational man I truly admired.  I first met J.T. back in October of 1995, about a year and a half after my first kidney transplant.  He was part of a small group of recipients who met once a month at a local hospital to talk about their transplant experiences.  We quickly became friends and a few months later,...

Terri Lynn

Terri Lynn

Age: 32
 was born and diagnosed at age two with Tyrosinemia, a very rare metabolic disease where the liver doesn't have any enzymes it needs to break down protein.  When my mother noticed I wasn't walking or acting like other babies my age she took me from one doctor to another with none of them knowing what was wrong with me. I even was misdiagnosed with Cystic Fibrosis and eventually sent...

Gabrielle Archangelo

Gabrielle Archangelo

Age: 20
My name is Gabrielle Archangelo I am 20 years old and I am a liver transplant recipient. A few months after I was born in 1990 I was diagnosed with a fatal liver disease known as Biliary Atresia in which the bile ducts of the liver do not function properly ultimately leading to liver failure. As a result, I was put on the transplant waiting list to receive a new liver. After months of...

Mary Wu

Mary Wu

Age: 27
It began with at least a 104 fever and being rushed to the emergency room at age 3.  The diagnosis was chronic kidney failure.  Or, more specifically, agenesis of the kidneys, which meant that my kidneys never fully developed.  I barely remember anything from those years, but I knew from then on that my life had changed forever.  I depended on my parents...

Holly  Werlein

Holly Werlein

Age: 25
I never thought in a million years that I would go through something like this. My story isn't like most peoples who unfortunately had to wait. I am one of the rare few that went through acute fulminate liver failure. I just happened to be in the right place at the right time. I was at the Cleveland Clinic for a totally unrelated appt and my mom noticed my eyes were yellow. I hadn't been...

Valen Elizabeth Keefer

Valen Elizabeth Keefer

Age: 27
A STORY OF HOPE: A LIFE OF TRIUMPH by Valen (Cover) Keefer From birth, Valen Keefer has faced a challenging medical heritage. Everyone on her mother’s side has poly­cystic kidney disease (PKD), a condition in which fluid-filled cysts grow on the kidneys, gradually causing them to lose function. At age 57, Valen’s mom has lived the longest of anyone. Grandmother, aunt,...

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