Welcome to TRIO . . .
Special Leadership Summit/Anniversary Dinner feature:
Videos
of TRIO's 1991 and 1992 Conventions (<-- click
here)
Thanks
to everyone who participated in our recent
TRIO "post
transplant sex survey" in support of
our Leadership Summit workshop on the topic:
"Post Transplant Intimacy"-
While that survey is now closed but you can view the
Leadership Summit video recording of that workshop and
the raw data results of the survey by clicking here: 2012
Leadership Summit
<< Celebrating 25 years
of service
>>
. . . your voice of the transplant community
TRIO is an independent, not-for-profit, international organization committed to improving the quality of life of transplant candidates, recipients, their families and the families of organ and tissue donors.
Connect and LIKE us through Facebook by clicking on
TRIO national board meets at CORE Sept 28th, 2012 with chapter guests
News of TRIO and Transplant
(click on
category titles below to jump to that news page):
Stay up with the latest on the pediatric lung allocation issue: See the links under UNOS News below...
New web site feature: Member stories
News from TRIO National (updated 5/8/13)
- June E-news is ready for viewing here (only until July 15th) (<-- click to view)
- April TRIO Lifeline newsletter in color is now available
(click on image to download Lifelines) (note: hard copy is off to the printer for mailing later)
- Rodger Goodacre elected to TRIO national board
- Meet new Chapter Council chairman and TRIO board member: Marty Maren
- Harvey Mysel elected to TRIO board (<-- click here to see more)
- Benefits of TRIO membership explained in new document
- 2013 TRIO scholarship application now available(<-- click to download WORD file application)
- TRIO Maryland: new chapter chartered
- Videos of TRIO's 1991 and 1992 Conventions
News from TRIO Chapters (updated 5/17/13)
- James Mateiko Runs in NYC Marathon In His (Organ Donor) Mother's Memory
- TRIO's Ron Taubman Interviewed on Renal Support Network Radio Show on Multiple Listing
- Blessings trump illness with "Power of Two"
- TRIO Youth Circle announces new leadership
Rx & Insurance News (updated 12/18/12)
- Grapefruit
Is a Culprit In More Drug Reactions
- Study
of Steroid and CNI Immunosuppression Withdrawal
Post-Transplant
- Beating
the Odds, and a Storm, to Get a Transplant
- Federal
government releases long-awaited health reform rules
Patient News of TRIO Interest (updated 6/14/13)
- Teen waiting for kidney holds dance recital in New Orleans hospital
- Heart troubles haunt Oregon family's 5 children
- Mother and son heart recipients are grateful for their second chances
- Teen Heart Transplant Recipient Excited to Attend Prom
- Man Gets New Heart; Finds Love with Donor's Sister
- On-line ABC half-hour video series highlighting organ donation (4 parts)
UNOS & Donation News (updated 6/15/13)
- Register as an organ donor in your home state
- Current UNOS proposals open for Public Comment
- latest monthly UNOS registration/patient listing summary report
- latest monthly UNOS registration/patient listing summary cover page
- latest annual UNOS registration/patient listing summary by state
- latest weekly UNOS "Facts About Transplantation"
- Pediatric Lung Allocation issue news & resources . . .
- 6/15: June TRIO E-News focuses with summary on pediatric lung allocation issue
- 6/15: Boy on lung transplant waiting list happy for Sarah Murnaghan (ABC News)
- 6/14: Sarah Murnaghan Lung transplant Puts Court Hearing Over Organ Donation Rules On Hold (Huff Post)
- 6/13: Mom on Lung Transplant: 'New Beginning for Sarah' (ABC News video)
- 6/13 Sarah Murnaghan, 10, has successful lung transplant surgery (AP video)
- 6/12: Sarah Murnaghan, 10, gets adult lung transplant she fought for (Note: should read "11" - CBS News video)
- 6/12: Sarah Murnaghan's Surgery Deemed a Success (HUFF POST)
- 6/11: Lung Transplants: Objective Fairness vs. Wisdom of Solomon (a background on the allocation policy history)
- Orqan transplant rules eased for children (Philly.com)
- 6/10: Mother of ailing NYC boy at Phila hospital please for lung (philly.com)
- 6/10: Vote Allows Children Under 12 Seeking Lung Transplant to Have Case Reviewed (NY Times)
- 6/10: UNOS approves discretionary listing of pediatric lung transplant candidates (UNOS press release)
- 6/10: Dying girl intubated as she awaits lung transplant (FOX News)
- 6/9: Transplant outrage has a solution: more organ donors (VITALS NBCNEWS.com)
- 6/9: Despite lung-donor ruling, eligibility still complex (Philly.Com)
- 6/7: Ethicists weigh in on pediatric lung transplant case (USA TODAY)
- 6/7: Boomer Esiason: Sarah 'has to have a chance' (Fox News video)
- 6/8: Judge's ruling for second child needing a lung raises concerns (Philly.com)
- ASTS and AST Release Joint Statement
- 6/6: Needed: A Conversation on organ donation (Philly.com)
- 6/6: Dying girl Seeking Adult Lungs Wins Temporary Exemption (Bloomberg)
- 6/5: Ethicist: Bureaucrats, politicians shouldn't decide if Sarah gets lungs (VITALS on NBCNEWS.com)
- 6/5: Judge orders girl added to adult lung transplant list (VITALS on NBCNEWS.com)
- 6/4: Sebelius won't intervene in girl's transplant case (VITALS on NBCNEWS.com)
- 5/29: Dying girl's plight sparks fight over organ transplants (CNN wire on ABC15)
- 5/27: OPTN Statement Regarding Lung Transplantation and Pediatric Priority (UNOS press release)
- Lung Transplant and Listing Explained
- Anonymous kidney donation is on the rise, fueled by compassion
- Living Lung Donation Story from Canada (video)
- Tool Created to Help Patients Decide Whether to Take a Kidney Offer or Wait for a Better One
- UNOS Transplant
calculators for candidates and recipients
Articles of General Interest (updated 6/17/13)
- Boston Children's Hospital starts world's first pediatric hand transplant program
- Mother Hears Daughter's Donated Heartbeat (video)
- Nice bench gift story about our friend Reg Green
- Stem
Cell 'Homing' Signal May Help Treat Heart Failure
Patients
- PBS movie
available on-line: Transplant: A Gift for Life
- Biomarkers
may give early warning of late heart transplant
rejection
- Study May
Change How Transplant Physicians Practice
Transplantation in the World News (updated 6/11/13)
- Organ donation: Public to be consulted on proposed law change (Presumed consent topic in Ireland)
- Lab-Grown Kidney Transplanted into Rats Produces Urine
- Stem
Cells Show Promise in Extending Transplanted Kidneys'
Survival Time
- Blog
post about Rose Parade float experience: The
Beginning (by Amy Waterman, Ph.D.)
- Gene
Therapy Reprograms Scar Tissue in Damaged Hearts
Into Healthy Heart Muscle
- Rejected
Hearts Now Viable for Transplantation After Stress
Echo
- Joseph
E. Murray, Transplant Doctor and Nobel Prize Winner,
Dies at 93
Legislative and National Issues (updated 4/17/13)
- State Organ Donor Legislation scoreboard
- Organ Donation Legislation and Policy
- Link
to NKF resource for legislative advocacy (easy
to use "write a letter to Congress" application)
- NY State
Passes Lauren's Law
- An evidence based assessment of universal coverage
- Tax
Breaks for Organ Donors Aren't Boosting
Transplant Supply
- Write to your legislators the easy way
Invitation:
to get your own personalized copy of future
e-News monthly issues send your e-mail address
to info@trioweb.org
Advertising opportunities with TRIO <-- click here for details
