TRIO Long Island
- Voting: Yes
- Street: PO Box 81
- City: Garden City
- State: NY
- Zip: 11530
- Contact: Joy A Oppedisano President
Long Island Chapter - June 2015
(see current newsletter link above for full updates)
**** Speaker's Bureau- High School and University Education Program
Long Island TRIO once again sends our heartfelt greetings to TRIO National, Jim, Sylvia, all national board members, and to all TRIO members and volunteers.
Our annual re-dedication of our “LI TRIO Donor Rose Garden” in Eisenhower Park on Long Island will be held on September 26, 2015. At this event we honor and thank Donors and Donor Families as we re-dedicate our “Long Island TRIO Donor Rose Garden” to Donors and Donor Families in a ceremony at our deeded Donor Rose Garden located in Eisenhower Park, East Meadow, NY in Nassau County- adjacent to Parking Field 6/6A. Donors and Donor families are indeed our heroes.
Our volunteers created this beautiful garden from scratch. We have adopted a portion of this; the largest park in all of nassau county and our chapter members under the leadership of Dave Rodgers personally and exclusively maintain the Donor Rose Garden that we designed and built in order to honor Donors and Donor Families. We are so pleased to welcome and honor hundreds of donor families at this annual event.
•New York State Senate Bill S5313 was officially introduced to the Health committee on 13 May, 2015, the day after we had multiple meetings with the Senate Health Chair Senator Kemp Hannon and his professional legislative team in Albany. This bill allows New Yorkers age 16 or older who wish to consent to donate the ability to enroll in the New York State Donate Life Registry, while preserving the parent’s ability to give final authorization should the individual who is under 18 be considered for organ, eye or tissue donation.
Much improvement is needed in our region and New York needs many more enrollments in the Donate Life Registry.
•Long Island TRIO supports The Living Donor Protection Act (HR 5263), sponsored by Representative Jerrold Nadler (D- NY) and Representative Michael Burgess (R-TX).
At this time, while living donors are considered heroes and have saved and extended lives, insurance companies have all too often flatly denied insurance coverage to living donors (in some cases immediately denying applications after the surgery question is answered), limited coverage to living donors, raised premiums (which has drastically affected living donors) and declined life insurance, disability insurance, or long-term care insurance applications submitted by living donors.
This bill will protect living donors from insurance discrimination. The bill also has provisions for the promotion of education with respect to living donation.
Additionally, the bill clarifies that living organ donors may use time granted through the Family and Medical Leave Act (FMLA) to recover from the transplant surgery.
While the bill is in committee discussions, LI TRIO will once again call on our friends and members to participate in our advocacy efforts by joining us in writing to our Members of Congress.
We have been working on letter writing campaigns in order to send letters to Members of Congress as we try to garner support and additional co-sponsors for this bill. We’ll publish more information on our chapter’s website at www.litrio.org inclusive of sample letters so if you so desire, you will be able to express your support for this bill.
Our meetings are held at 145 Community Drive, Great Neck, NY. on the second Wednesday of each month with no meetings in December, July and August.
While we are looking for new members as an ongoing mission in order to constantly maintain and improve our chapter's roster of activities, our membership has remained stable for the past few years. We are hoping for and working toward more growth and want to add to our 140+ families that are members in good standing with paid dues to both the chapter and TRIO National.
•Long Island TRIO hit a home run for Organ Donation Awareness at Ducks baseball games and other athletic events for the past ten years where our singers performed our nation's National Anthem. This event helped bring more attention to the cause we all work toward; the need for organ donation in order to save lives. At the most recent game, there was a public service announcement at the beginning of each game and it described the need to save lives with Organ Donation and The Ducks made additional announcements about TRIO and our Organ Donation Outreach and Awareness efforts during the fourth inning of the baseball game.
•At this time, I would like to continue to offer information with respect to special needs Prescription Drug Resources. Some drug companies have special programs for people who do not have insurance coverage for medications and cannot afford their own. To get a list of these companies and what they require, please visit www.helpingpatients.org or call (202) 835-3400.
You can also write to Pharmaceutical Manufacturers Association 1100 15th Street, NW, Washington, D.C. 20005.
The Together RX Access Card may help as well. The card can help uninsured patients get a 25-40% discount on over 275 prescription drugs. Visit www.togetherrxaccess.com or call (800) 444-4106. Our chapter’s volunteers will also offer specific discount cards again in the coming weeks just as we have done in the past. I hope these can be of help to as many people as possible.
Here's wishing you the very best in good health and happiness.
Mike Sosna, Director of Communications and Public Policy
June 14, 2015
TRIO-Long Island chapter